A new questionnaire, “Promoting capacity-development actions” – has been released by one of te ERDERA teams that focuses on harmonization of the different national capacities.
The short online survey asks researchers, clinicians, patient-group leaders and policy-makers to rank the obstacles they face—whether that means scarce laboratory equipment, gaps in specialist training or a lack of national rare-disease plans. The evidence gathered will feed directly into the design of future ERDERA training schemes, mentoring networks and targeted funding calls aimed at countries that currently struggle to join large European projects.
The questionnaire takes about ten minutes to complete and is available at the following link: https://forms.office.com/e/7sK6fsmqRp
The survey will remain open until mid-May, and preliminary findings are expected to be released over the summer. Please find further information here.