The European Union, its Member States and countries associated to its research and innovation programme, Horizon Europe, have joined forces in a new European Partnership on Rare Diseases: ERDERA (The European Rare Diseases Research Alliance). Launched under Horizon Europe, ERDERA’s aim is to transform the landscape of rare disease research across the continent and deliver significant health benefits to the estimated over 30 million people in Europe affected by rare diseases through improved prevention, diagnosis, and treatment. With over 170 partners from 37 countries, a 7-year duration and a total estimated budget of €380 million, ERDERA is the largest co-funded partnership in the field of rare disease research and innovation.
The Partnership has outlined several components of activities, including:
Joint Transnational calls for interdisciplinary and collaborative research and innovation projects;
Setting up of the Clinical research network to accelerate the clinical trials preparedness on rare diseases;
Alignment and integration of national and European research plans;
Knowledge and data sharing and analyses services;
Enhancing international cooperation by supporting the Scientific Secretariat of the International Rare Disease Research Consortium (IRDiRC);
Boost public-private research collaboration models;
Capacity-building and training, for researchers, but also clinicians and patients.
You can find more information about the Partnership here and follow the developments on the ERDERA website.